Is using an accomodation like working from bed giving up? I do not like laptops. The End. I don’t know how people function without a dedicated workspace. I LOVE my desk. I always buy desktop computers. I haven’t owned a laptop since I stopped traveling…
It’s a fun game that I play over and over where I am terrified that I’m a slacker and I actually could keep up with the healthy. There is a special type of torture included in having a high achieving personality and a chronic illness….
I won’t argue that “the internet powers that be” don’t love a good consistent blog, Substack post or social media account. I will not even argue that we as humans don’t love and crave consistency. But can we be considered reliable and successful with a…
Ever realize that you are hitting a new milestone in the moment? 2022 was the first time that I had to use accommodations for voting. When we arrived, we were told it would be up to a two hour wait in line. I was having…
We all know that some events are more important to attend than others. A wedding is more important than a sports practice. I’m sure we have all had a scheduling conflict and have had to decide which event was more important to attend. I want…
When you look at your calendar and want to cry a little, how do you survive it with chronic illness? Both rigid and flexible routines rule my world and make it all possible. On Sundays, the ONE thing I always make sure happens is I…
