Every day is a mix of art + science. What is on my plate for the day? How do I rank my health today? Can I push it or do I need to be protective of my health battery? A common descriptor for the energy…
Is using an accomodation like working from bed giving up? I do not like laptops. The End. I don’t know how people function without a dedicated workspace. I LOVE my desk. I always buy desktop computers. I haven’t owned a laptop since I stopped traveling…
It’s a fun game that I play over and over where I am terrified that I’m a slacker and I actually could keep up with the healthy. There is a special type of torture included in having a high achieving personality and a chronic illness….
I won’t argue that “the internet powers that be” don’t love a good consistent blog, Substack post or social media account. I will not even argue that we as humans don’t love and crave consistency. But can we be considered reliable and successful with a…
Ever realize that you are hitting a new milestone in the moment? 2022 was the first time that I had to use accommodations for voting. When we arrived, we were told it would be up to a two hour wait in line. I was having…
We all know that some events are more important to attend than others. A wedding is more important than a sports practice. I’m sure we have all had a scheduling conflict and have had to decide which event was more important to attend. I want…
When you look at your calendar and want to cry a little, how do you survive it with chronic illness? Both rigid and flexible routines rule my world and make it all possible. On Sundays, the ONE thing I always make sure happens is I…
“Nobody has more hope and optimism than a planner that has planned out every hour of her day in pen.” You have planned, written things down in pen, and are ready to check those boxes! Super excited about what you have planned out, life comes…
SO YOUR LIFE IS A BIT OF A MESS. We are not going to go through qualifiers here. If you feel like life is currently a mess, then it is. It doesn’t matter if you don’t have it as bad as someone else. It doesn’t…
